June 2017 – Short Bowel Syndrome Foundation for Children of New England, Inc.®

The Short Bowel Syndrome Foundation for Children of New England, Inc. (SBSNE, Inc.) is a 501(c)(3) non-profit charitable organization which was created to provide family support for children afflicted with gastrointestinal conditions, birth defects, and diseases which have led to Short Bowel Syndrome (SBS) and their healthcare providers. SBSNE, Inc. has been created to promote awareness, provide parent-to-parent, financial, and educational support for families who have children who have been diagnosed with Short Bowel Syndrome, as well as providing at least 10% of all monies brought in to various researchers who are investigating the birth defects leading to and causes of Short Bowel Syndrome.

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Website: http://www.lecoledesenfants.com/

Attend our upcoming 5K Run/Walk on June 24th at Roger Williams Park in Providence Rhode Island to help provide SBS families with a stipend for nutritional purposes to help ease this financial stress which comes with the condition. Register, donate, and learn more at the below links:

https://www.raceentry.com/races/sbsne-5k-runwalk-/2017/register

https://www.raceentry.com/races/sbsne-5k-runwalk-/2017/volunteers/register

https://www.raceentry.com/races/sbsne-5k-runwalk-/2017/register/charity/standalone

Nicole White – President of  Short Bowel Syndrome Foundation for Children of New England, Inc. ®

As the Hasbro Children’s Hospital Champion, Kyrie White and his parents, Nicole and Garrick White, traveled to Washington, D.C., to share their story with a national audience. There they met with U.S. Senator from Rhode Island Sheldon Whitehouse  (click image to read full article)